Professional Associations are beginning to take note that parents should be a part of all aspects of a baby’s life from the beginning and not just from the time that child is born, but when standards of care guidelines are written and when research and trials are designed.
Striking similarities regardless of our NICU experiences may be similar, but our individual stories are uniquely our own. Each of them peppered with their own sets of challenges and triumphs. And each is so poignant and such an integral part of who we are and who we have become. There’s incredible power in our stories. Our stories paint images of parents crumbling to the floor in devastation. And our stories also paint beautiful pictures of our stories of those glorious moments when we finally get to hold those babies in our arms.
Our stories can draw foreigners into our tiny little NICU world and we can even bring physicians and nurses into their workplace through our own eyes. But above all, our stories can provide that pinpoint of light that a parent needs in their darkest hour. Where that seed of hope is planted, and the thought that everything is going to be ok is actually entertained.
The Preemie Parent Alliance has had the incredible honor to represent our unique view of NICU and post-NICU experiences in a number of local and national settings. In 2013, PPA conducted a Parent Panel Workshop at the National Association of Neonatal Nurses (NANN) Conference, receiving the highest review marks out of the entire conference. PPA also provided a review board for NANN’s Discharge Review Module which was released in 2014 called Baby Steps to Home and we continue to provide a review panel for their Nursing Journal called Advances in Neonatal Care.
Preemie Parent Alliance members also had the privilege to provide resources, review panel and was highlighted in Your NICU Baby by The Wellness Network.
Other significant PPA speaking opportunities have included the NEO Conference, National Association of Perinatal Social Workers, and Maternal Infant Health Conference. Learn more about our PPA Speakers Bureau.